My Cystic Fibrosis (CF) journey started three years ago, when my wife and I started planning to start a family. We were excited, hopeful - just like any couple dreaming of becoming parents. But during that process, I learned something unexpected: I am affected by cystic fibrosis. I had no idea. I've always been healthy. I breathe normally. I don't fit the image most people have of someone with CF.

Now, when most people think of cystic fibrosis, they picture someone who struggles to breathe, who spends hours a day doing treatments, who's in and out of the hospital. And for many, that's the reality. CF is a genetic disease that primarily affects the lungs and digestive system. It's progressive, and historically, it's been life-limiting.

And thanks to advances in science and genetic testing, more people (like me) are discovering they're affected by CF in ways that aren't always visible, but show up in other ways.

However, for many with Cystic Fibrosis, it's a daily battle just to breathe. And, through that darkness - came decades of research, relentless advocacy, and the unwavering support of communities like this one - days have gotten brighter.

In 2019, a breakthrough therapy called Trikafta was approved. It treats the underlying cause of CF for about 90% of people living with the disease. For many, it's been life-changing.

But, it's not enough. We are NOT done. About 10% of people with CF still don't benefit from the current therapies. And even for those who do, CF remains a lifelong condition. Its exciting to say, that the next scientific breakthroughs - like genetic therapies and, ultimately, a cure - are within our reach. But they need our continued support.

And here's the good news: you don't have to be a scientist to make a difference. You can advocate. You can raise awareness. You can donate. Every step brings us closer to a future where no one has to live with CF.

Thank you for reading my story and being a part of our shared missing to change what "CF" means... Cure Found!

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