My Great Strides Story
Marina Haase
Marina Haase
At three weeks old Nehemiah was diagnosed with Cystic Fibrosis after he had experienced a complication with meconium Ileus that resulted in short bowel syndrome. Nehemiah spent the first five months of his life in the NICU where he received 3 abdominal surgeries. At now 3 years old with a great care plan Nehemiah has been flourishing.
While there are many great drugs and treatments, there is currently no cure for cystic fibrosis and too many people with CF die young. I'm walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward - a cure for everyone with CF.
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