My Great Strides Story
Megan Hulen
Megan Hulen
Dallas was 5 weeks old when he was diagnosed with CF, or cystic fibrosis. After weeks of failure to thrive, weeks of worry and concern and knowing something wasn’t right. Two failed sweat tests and one genetic blood test later we finally had confirmation.
CF...what is it? A genetic life-threatening disorder that damages the lungs and digestive system. Cystic fibrosis affects the cells that produce mucus, sweat, and digestive juices. It causes these fluids to become thick and sticky. They then plug up tubes, ducts, and passageways. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Right away Dallas was started on pancreatic enzymes which allow his body to digest food and absorb nutrients. He was started on inhaled medications try to open up his airways and thin the secretions.
Unfortunately, at 3 months he was admitted for his first CF exacerbation and spent 15 days in the hospital. At 18 months old he became sick again requiring another hospitalization.
2022 was a big year for Dallas and our family. In 2022 Dallas turned 6 and was eligible for the new, life-saving, "miracle" drug, Trikafta!! Dallas has thrived since starting Trikafta. His body rebounds quicker from sickness and he has not had any more hospitalizations🙌🏻
Medication breakthroughs like Trikafta are not possible without donations to the CF Foundation which is working relentlessly to find a cure. The CF community does not receive government funding like other diseases and relies on donations from businesses and individuals.
While Trikafta has been life changing for so many folks with CF, it is not a cure and is not an option for everyone with CF. Some people with CF have different genetic mutations and are not eligible for Trikafta. We share the same goal as the CF Foundation, to find a cure for everyone with CF.
We would love for you and your family to join us for Great Strides 2025 as we walk for Dallas and others fighting CF. Help us make CF stand for Cure Found💜
Right away Dallas was started on pancreatic enzymes which allow his body to digest food and absorb nutrients. He was started on inhaled medications try to open up his airways and thin the secretions.
Unfortunately, at 3 months he was admitted for his first CF exacerbation and spent 15 days in the hospital. At 18 months old he became sick again requiring another hospitalization.
2022 was a big year for Dallas and our family. In 2022 Dallas turned 6 and was eligible for the new, life-saving, "miracle" drug, Trikafta!! Dallas has thrived since starting Trikafta. His body rebounds quicker from sickness and he has not had any more hospitalizations🙌🏻
Medication breakthroughs like Trikafta are not possible without donations to the CF Foundation which is working relentlessly to find a cure. The CF community does not receive government funding like other diseases and relies on donations from businesses and individuals.
While Trikafta has been life changing for so many folks with CF, it is not a cure and is not an option for everyone with CF. Some people with CF have different genetic mutations and are not eligible for Trikafta. We share the same goal as the CF Foundation, to find a cure for everyone with CF.
We would love for you and your family to join us for Great Strides 2025 as we walk for Dallas and others fighting CF. Help us make CF stand for Cure Found💜
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