Brave Brothers
Our Cystic Fibrosis Story
Lincoln was diagnosed with Cystic Fibrosis (CF) when he was 4 weeks old. Cystic Fibrosis is a progressive genetic disorder where they are born with a faulty protein that affects the body’s cells, tissues and the glands. The cells don’t work properly causing the body to create a thick sticky mucus that affects the lungs, pancreas and several organs of the body. When Lincoln was a baby, we knew something wasn’t quite right when he didn’t gain any weight and was always in pain after eating. He also started showing signs of labored breathing and had a difficult time eating any food. When Lincoln was diagnosed with CF we were told devastating news that he would have a shortened life span and one that would be very challenging.
Calvin was diagnosed in the womb through prenatal amniocentesis. When Calvin was born he had a bowel obstruction (common in CF babies) due to his thick, sticky mucus. This issue caused him to be unable to eat normally for the first week of his life. He was in the NICU for 13 days and underwent several painful procedures while receiving nutrients through a central PICC line.
When Lincoln and Calvin catch a virus or any harmful bacterial, it can cause long-term damage to their lungs, making it difficult to breathe. To keep them healthy, on a typical day, each of them does two treatments (a vibrating lung vest with inhaled medicine). When they are sick their treatment increases to 3-4 treatments daily which take time away from school and other activities. Other daily necessities include taking several medications to maintain proper growth and function as well as sanitizing and persistent germ control. They take enzyme pills with every meal in order for their bodies to digest fats and proteins. Lincoln and Calving fight every day to stay healthy and through it all, their brother Jackson is their biggest cheerleader and support. He stays with them during treatment and encourages them daily. These boys are truly our Brave heroes.
Your support makes a difference
Through the challenges, we have so much hope for Lincoln and Calvin’s lives. Families and friends before us have fought to find a cure by fundraising and promoting research in order to find a cure for Cystic Fibrosis. Lincoln and Calvin have benefited tremendously from new medications that have been funded by people just like you, creating an increase of longevity and quality of life. As a 6 year old and 18 month old, each are living a happy and vibrant life. However, this disease is progressive and worsens as they grow. We continue to fight to find a cure for this disease and hope you can support us in this! Consider being part of this quest by donating to the CF foundation.
The Cystic Fibrosis Foundation is at the helm of new age medication technology involving gene editing therapy. This type of therapy is groundbreaking in the sense that it aids in teaching the body’s cells how to work properly, rather than slowing the damaging process as done by medications in the past. This type of research is not only benefiting Cystic Fibrosis but also many other rare diseases that many people all over the world deal with. You can be a big part of this process just by donating to this cause. We are so thankful for your love and support and consideration in helping find a cure for our Brave Brothers.
Lincoln was diagnosed with Cystic Fibrosis (CF) when he was 4 weeks old. Cystic Fibrosis is a progressive genetic disorder where they are born with a faulty protein that affects the body’s cells, tissues and the glands. The cells don’t work properly causing the body to create a thick sticky mucus that affects the lungs, pancreas and several organs of the body. When Lincoln was a baby, we knew something wasn’t quite right when he didn’t gain any weight and was always in pain after eating. He also started showing signs of labored breathing and had a difficult time eating any food. When Lincoln was diagnosed with CF we were told devastating news that he would have a shortened life span and one that would be very challenging.
Calvin was diagnosed in the womb through prenatal amniocentesis. When Calvin was born he had a bowel obstruction (common in CF babies) due to his thick, sticky mucus. This issue caused him to be unable to eat normally for the first week of his life. He was in the NICU for 13 days and underwent several painful procedures while receiving nutrients through a central PICC line.
When Lincoln and Calvin catch a virus or any harmful bacterial, it can cause long-term damage to their lungs, making it difficult to breathe. To keep them healthy, on a typical day, each of them does two treatments (a vibrating lung vest with inhaled medicine). When they are sick their treatment increases to 3-4 treatments daily which take time away from school and other activities. Other daily necessities include taking several medications to maintain proper growth and function as well as sanitizing and persistent germ control. They take enzyme pills with every meal in order for their bodies to digest fats and proteins. Lincoln and Calving fight every day to stay healthy and through it all, their brother Jackson is their biggest cheerleader and support. He stays with them during treatment and encourages them daily. These boys are truly our Brave heroes.
Your support makes a difference
Through the challenges, we have so much hope for Lincoln and Calvin’s lives. Families and friends before us have fought to find a cure by fundraising and promoting research in order to find a cure for Cystic Fibrosis. Lincoln and Calvin have benefited tremendously from new medications that have been funded by people just like you, creating an increase of longevity and quality of life. As a 6 year old and 18 month old, each are living a happy and vibrant life. However, this disease is progressive and worsens as they grow. We continue to fight to find a cure for this disease and hope you can support us in this! Consider being part of this quest by donating to the CF foundation.
The Cystic Fibrosis Foundation is at the helm of new age medication technology involving gene editing therapy. This type of therapy is groundbreaking in the sense that it aids in teaching the body’s cells how to work properly, rather than slowing the damaging process as done by medications in the past. This type of research is not only benefiting Cystic Fibrosis but also many other rare diseases that many people all over the world deal with. You can be a big part of this process just by donating to this cause. We are so thankful for your love and support and consideration in helping find a cure for our Brave Brothers.
Lincoln Nye
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