After a perfect delivery and first day with our baby girl, we were quickly swept in to an emergency surgery at the local children’s hospital and a two-month NICU stay while her bowels healed and we were introduced to her diagnosis of cystic fibrosis. We had heard of the disease before, but truly did not know what it meant. The surgeon tried to tell us that there was newfound hope on the horizon for those born with CF today, but it was extremely difficult to believe and understand at the time as the new therapies were still so fresh and not yet tried with young children. We became quickly immersed with administering several new medications, performing Chest Physiotherapy (CPT), placing feeding tubes, and becoming abnormally aware of our surroundings in regards to germ exposure. Not only were we navigating being new parents, but now we were learning an entirely new language and thrown in to a world we never knew existed. Sometimes it felt insurmountable and the future seemed so uncertain.