Rylee Watkins
As some of you may know, Our journey began in May of 2023 when Devon and I welcomed our beautiful baby girl Rylee into this world. Little did we know that in less than a month after she made her debut our lives would change so drastically. One day before Rylee turned a month old she was diagnosed with Cystic Fibrosis. Shortly thereafter, Devon and I began to see first hand just how physically, mentally, and financially costly this disease can be. Through months of recurring medications, treatments, tests, and traveling to Jacksonville for doctor’s appointments with her specialists Rylee has taken it all like a champ. Now at 2 years old and with years of research for Cystic fibrosis Rylee has finally been accepted to take Trikafta! She has inspired Devon and I so much that we want to do more to raise awareness about Cystic Fibrosis and support future research to hopefully find a cure one day!
That’s why we started
🌟Rylee’s Respiratory Rockstars!🌟
A newly formed Great Strides team since 2024.
Great Strides is part of the Cystic Fibrosis Foundation and is dedicated to raising awareness, supporting research, and patients and their families.
Why join us?
- **Support Rylee:** By joining our team, you're directly supporting Rylee and others like her who battle CF.
- **Raise Awareness:** Help us raise awareness about CF and the importance of research and treatments.
- **Make an Impact:** Every cent we raise goes towards improving the lives of CF patients and their families.
How can you get involved?
1. **Join Our Team:** Become a member of Rylee’s Respiratory Rockstars and walk with us at any of the Great Strides events. Also if you are not in Valdosta, you can sign up for Great Strides events in your area under our team name.
2. **Fundraise:** Spread the word and raise funds from your network to support CF research and programs.
3. **Share Rylee's Story:** Share Rylee’s journey with CF to inspire others and bring attention to this important cause.
Together, we can turn challenges into opportunities and bring hope to those affected by Cystic Fibrosis. Join Rylee’s Respiratory Rockstars today, and let’s stride towards a brighter future together! #RyleesRespiratoryRockstars #GreatStrides #CureCF #CFWarrior
Here is some information on Cystic Fibrosis.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for not only Rylee, but everyone with CF.
That’s why we started
🌟Rylee’s Respiratory Rockstars!🌟
A newly formed Great Strides team since 2024.
Great Strides is part of the Cystic Fibrosis Foundation and is dedicated to raising awareness, supporting research, and patients and their families.
Why join us?
- **Support Rylee:** By joining our team, you're directly supporting Rylee and others like her who battle CF.
- **Raise Awareness:** Help us raise awareness about CF and the importance of research and treatments.
- **Make an Impact:** Every cent we raise goes towards improving the lives of CF patients and their families.
How can you get involved?
1. **Join Our Team:** Become a member of Rylee’s Respiratory Rockstars and walk with us at any of the Great Strides events. Also if you are not in Valdosta, you can sign up for Great Strides events in your area under our team name.
2. **Fundraise:** Spread the word and raise funds from your network to support CF research and programs.
3. **Share Rylee's Story:** Share Rylee’s journey with CF to inspire others and bring attention to this important cause.
Together, we can turn challenges into opportunities and bring hope to those affected by Cystic Fibrosis. Join Rylee’s Respiratory Rockstars today, and let’s stride towards a brighter future together! #RyleesRespiratoryRockstars #GreatStrides #CureCF #CFWarrior
Here is some information on Cystic Fibrosis.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for not only Rylee, but everyone with CF.
AUG
14
14
We love our CF team at Nemours!
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