
Nuts for Natalie
This is our family's eighth year participating in Great Strides to raise money for the Cystic Fibrosis Foundation. Since we started in 2018, family and friends from all over the U.S. have jumped in to support the CF Foundation's commitment to finding a cure for all who live with CF. We are absolutely thrilled to be able to walk again on May 10 in West Haven!
Natalie works so hard to stay healthy. On any given day, she swallows 40-45 pills of all sorts of shapes and sizes and completes at least three airway clearance treatments, which involves wearing her vest for 21 minutes and nebulizing specialty medications designed to thin and move her sticky mucus so it doesn’t get trapped in her lungs. When she’s sick, which is too often in the winter, she’ll do airway clearance treatments four to five times a day until the bug is gone. In any given month, Natalie will spend one to two days just doing airway clearance treatments.
The CF Foundation provides much-need funding for life-saving research to improve and lengthen the lives of those living with Cystic Fibrosis. In addition to game-changing drugs like Trikafta, the CF Foundation is funding exciting research in the areas of gene therapy and gene editing to fix the root cause of CF.
These advancements were made possible because of generous contributions from you!! Words can’t express how grateful our family is for your support of our little girl.
We hope you can support us again this May!
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