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My Great Strides Story

Eileen Mcconville
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Eileen McConville

There is currently no cure for cystic fibrosis.  Although we have made great progress in the past several years, we still have a long way to go to find a cure. Trikafta was introduced in 2019, and fortunately Katie has benefitted from this modulator along with thousands of other CF patients.  These advances came about because of generous donors like you. 

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. In late 2024, the CF Foundation announced two significant advancements: A new modulator, Alyftrek which is taken only once a day and will likely replace Trikafta for those who cannot tolerate that drug well.  Alyftrek is also available to an additional 32 mutations who were not eligible for Trikafta. Also, the FDA announced approval for the addition of 91 rare mutations that are now eligible for Trikafta.  Many more people with CF now have access to life-changing medications.  People like Katie are breathing easier and returning to the workforce and more normal lives.  But there are still thousands of CF patients with no treatment.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.

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$1,745
raised of $2,500 goal
 

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Team Chronically Fabulous

$1,745
$2,500

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