My Great Strides Story
Annelle Tanner
Fundraising for Alexandria Great Strides
Annelle Tanner
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality, especially for our 14-year-old granddaughter, Eva.
As a bright, energetic, funny, theatre-immersed (ESPECIALLY Improv!!) young lady who is ALL TEENAGER, Eva is committed for the long haul to do what is necessary to ensure continuing along her life's timeline. She knows that she must be diligent in taking the pills required for digestion, and less sticky mucus daily, completing 2 breathing treatments- EARLY and LATE daily, remain tuned in to unusual sensations in her body that may indicate infection, inflammation, GI issues, adverse medication responses, which require medical intervention immediately in order to maintain necessary oxygenation and balance within her body. New drugs like Trikafta and Alyftrak, recently developed using donations to research, are helping but do not eliminate the daily focus on promoting her optimal health amidst this disease for which there is not cure...yet.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. For Eva, this includes overwhelming anxiety requiring additional therapies and careful monitoring of diet and activities, as well as growth issues, requiring weekly painful injections. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
As a bright, energetic, funny, theatre-immersed (ESPECIALLY Improv!!) young lady who is ALL TEENAGER, Eva is committed for the long haul to do what is necessary to ensure continuing along her life's timeline. She knows that she must be diligent in taking the pills required for digestion, and less sticky mucus daily, completing 2 breathing treatments- EARLY and LATE daily, remain tuned in to unusual sensations in her body that may indicate infection, inflammation, GI issues, adverse medication responses, which require medical intervention immediately in order to maintain necessary oxygenation and balance within her body. New drugs like Trikafta and Alyftrak, recently developed using donations to research, are helping but do not eliminate the daily focus on promoting her optimal health amidst this disease for which there is not cure...yet.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. For Eva, this includes overwhelming anxiety requiring additional therapies and careful monitoring of diet and activities, as well as growth issues, requiring weekly painful injections. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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