Charles Riffert
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m raising funds in the hope that's not the future for my nieces, Cora and Frankie, or for my cousin, Kaitlyn - along with all those who fight daily to manage this disease.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. While our family has been fortunate to benefit from from the miraculous medical advances developed through past CFF fundraising and investments, there's still work to be done. Though the modulators have made an incredible difference in lung function, digestive impairment lingers, Frankie still struggles to gain weight and requires daily use of her feeding tube. Additionally, due to irreversible damage of the pancreas before modulator treatment, up to 50% of those with CF will develop CF-related diabetes. Even more concerning, those with CF are 5-10x more likely than the general population to develop colon and other cancers.
With funding and personnel cuts to the NIH and FDA, we need strong private sector groups leading the way. Given its proven track record of venture philanthropy, the CF Foundation is poised to develop cutting-edge technology to develop gene therapies and advanced treatments that will further science and ultimately lead to breakthroughs in other diseases as well.
Please consider joining our fight.
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. While our family has been fortunate to benefit from from the miraculous medical advances developed through past CFF fundraising and investments, there's still work to be done. Though the modulators have made an incredible difference in lung function, digestive impairment lingers, Frankie still struggles to gain weight and requires daily use of her feeding tube. Additionally, due to irreversible damage of the pancreas before modulator treatment, up to 50% of those with CF will develop CF-related diabetes. Even more concerning, those with CF are 5-10x more likely than the general population to develop colon and other cancers.
With funding and personnel cuts to the NIH and FDA, we need strong private sector groups leading the way. Given its proven track record of venture philanthropy, the CF Foundation is poised to develop cutting-edge technology to develop gene therapies and advanced treatments that will further science and ultimately lead to breakthroughs in other diseases as well.
Please consider joining our fight.
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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