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Willow Aja

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Willow Aja

Help Colt and Willow Breathe Easier – Join the Aja’s Amigos Fight Against Cystic Fibrosis

Right now, there is no cure for cystic fibrosis (CF). Far too many lives are cut tragically short because of it. That’s why we’re walking – for Colt, Willow, and every person who battles CF every single day. We walk with hope. We walk with purpose. We’re asking for your support. Join the Aja’s Amigos at the Cystic Fibrosis Foundation Great Strides at the Q2 Stadium on May 10th either in person or by donating to our team. The check in starts at 9a, program will start at 9:45a, followed by a walk and lunch. Let us know if you will be joining us, either by walking with us, donating to the CF foundation, or both!

http://fundraise.cff.org/austin25/WillowA

CF is a relentless genetic disease that attacks the lungs, pancreas, and other vital organs. It causes persistent infections, serious complications, and too often, leads to respiratory failure. It’s a fight no one should have to face.

Colt and Willow may look like ordinary teenagers, but their lives are anything but. Their days are filled with an hour of breathing treatments, multiple medications, and constant monitoring. Even with groundbreaking medications like Trikafta, they’ve faced infections requiring weeks of IV antibiotics. We’re now cautiously optimistic about a new therapy, Alyftrek, that Colt and Willow started this Spring. The CF community is hopeful it will help the CF channel work better to decrease infections, help digestion, have less side effects on mental health and the liver and most importantly to slow down the damage to the lungs. Even with this hope, there’s still no cure. We’ve come a long way thanks to supporters like you – but we’re not there yet. Not everyone can take these breakthrough medicines, either based on their genetic mutation or based on the side effects.

That’s where you come in. Will you walk with us? Will you donate to help Colt and Willow breathe a little easier – and dream a little bigger?

Your donation isn’t just a gift – it’s a lifeline. It funds critical research, accelerates new treatments, and gets us closer to a world where no child has to grow up battling CF. Your support today could help save lives tomorrow. You have the power to advance the research and science needed to drive our shared dream forward – a cure for Colt, Willow, and everyone with CF. 

With gratitude and hope,

Colt, Willow, Dan and Nicole

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.