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My Great Strides Story with Miles

Kalí Rourke

Fundraising for Austin Great Strides 2026

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Kalí Rourke

Miles is only five years old. He has dealt with CF since birth, and I was a caregiver for him in his first year. He is sweet, smart, and funny, and he deals with therapies and treatments multiple times a day. 

There is currently no cure for cystic fibrosis, and too many people with CF die young. I’m walking to help change that reality.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure. Miles has digestive difficulties and liver damage from his form of CF.

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance of living a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF. Thanking you in advance for your support for Miles!
JAN
14

ALL FIVE FINGERS! Happy Birthday, Miles!

JAN
13

Curious, questioning, and constantly narrating his own life! Miles has an amazing mind and vocabulary.

Miles loves music, dance, and LEAVES!

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$315
raised of $2,000 goal
 

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Team Miles for Miles

$315
$25,000

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Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.