Sydna Marshall
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality. While I've been fortunate enough to take a genetic modulator, there is still 10% of the CF population who can't take a modulator. I've been on Trikafta since 2022 and while it has been life-changing, I still have CF complications. This past year I was diagnosed with cystic-fibrosis-related diabetes. This is a complex beast. It's a bit like a combo of both Type 1 and Type 2: becaue of pancreatic scarring my body doesn't make enough insulin and my insulin resistance fluctuates because of this.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
I'm grateful for my health and truly being able to live thanks to new modulators. I'm able to do things I wasn't able to do in the past all without nebulizer treatments. I hope we can find something for the remaining 10% who can't take modulators and ideally a cure for all of us!
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
I'm grateful for my health and truly being able to live thanks to new modulators. I'm able to do things I wasn't able to do in the past all without nebulizer treatments. I hope we can find something for the remaining 10% who can't take modulators and ideally a cure for all of us!
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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