Victoria Pontillo
Our daughter Quinn was born in June 2024. When she was two weeks, while in the pediatrician’s office, we were given the devastating news that her newborn screen came back positive for CF and our lives changed forever.
Quinn has had a rough start but has benefited greatly from being able to take Trikafta. She may be small, but she is Mighty. We are blessed with an amazing village of family and friends. We know medicine has come so far, but we will not take our foot off the gas. We are grateful that she is part of the 90% of people with CF that are eligible for modulators. As amazing as Trikafta has been for Quinn, it is still not a cure.
We are walking to change that. We are walking to find a cure for all people with CF, not just our Mighty Quinn.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m climbing to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Quinn has had a rough start but has benefited greatly from being able to take Trikafta. She may be small, but she is Mighty. We are blessed with an amazing village of family and friends. We know medicine has come so far, but we will not take our foot off the gas. We are grateful that she is part of the 90% of people with CF that are eligible for modulators. As amazing as Trikafta has been for Quinn, it is still not a cure.
We are walking to change that. We are walking to find a cure for all people with CF, not just our Mighty Quinn.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m climbing to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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