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A Father’s Journey with Cystic Fibrosis

Zachary Dehart
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Zachary DeHart

As a father, there’s nothing more important to me than the health and happiness of my child. But when my son was diagnosed with Cystic Fibrosis, I quickly learned that love alone doesn’t always make things easier. Instead, love is what drives me to do everything I can to ensure their life is filled with joy, hope, and as much normalcy as possible.
 

Every day, we follow routines — breathing treatments, medications, check-ups, and making sure that our child stays on top of their health. It’s a lot, and it can be exhausting, but seeing my child’s smile, hearing his laughter, and watching him live life to the fullest make every bit of effort worth it. It’s not always easy — there are hospital visits, and sometimes the fear creeps in that we’re running out of time. But what I’ve learned is that Cystic Fibrosis doesn’t define my child, and it doesn’t define our family.
 

Despite the challenges, we make sure that our child experiences all the things that other kids do — and then some. 
 

There are days when I wonder about the future and what’s in store for my child. But then I see the strength in their eyes. I see the courage in their smile. And I know that we, as a family, will continue to fight. We won’t let CF take away the things that matter most.
 

I walk in the Great Strides walk because I want to fight for my child’s future. I want to raise money and awareness so that one day CF will be a thing of the past, and children no longer have to face the same struggles. Every step I take is a step toward that hope — for my child, for other kids, and for families everywhere.
 

As a father, I will always do whatever it takes to give my child a full and happy life. No matter the obstacles, I know they can still chase their dreams. We may be facing CF, but we’re also facing it with love, strength, and determination. And that will always make all the difference.

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.