Essie B’s Hive
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Esabella's Story
Esabella's parents discovered they both were carriers for the CF gene (double F508del) during screening when Hailey was pregnant. Doctors confirmed Esabella had CF when she was two weeks old. From there she began Creon (enzymes that she digests with specific acidic foods) to help her gain weight, breathing treatments and nebulizers to keep her lung function healthy, and eventually modulators (miracle drugs) to help decrease her CF symptoms. She had a rough start in life: being labeled failure to thrive. She was the size of a newborn still at 4 months and even now is small for her age.
However, this has not stopped our little warrior. She is still doing her best to live a normal kid life, just with some extra steps!
Esabella's parents discovered they both were carriers for the CF gene (double F508del) during screening when Hailey was pregnant. Doctors confirmed Esabella had CF when she was two weeks old. From there she began Creon (enzymes that she digests with specific acidic foods) to help her gain weight, breathing treatments and nebulizers to keep her lung function healthy, and eventually modulators (miracle drugs) to help decrease her CF symptoms. She had a rough start in life: being labeled failure to thrive. She was the size of a newborn still at 4 months and even now is small for her age.
However, this has not stopped our little warrior. She is still doing her best to live a normal kid life, just with some extra steps!
AUG
19
19
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