My Great Strides Story
Jillian Koroskenyi
Fundraising for Charlotte Great Strides
Jillian Koroskenyi
Hey guys!! It's been a while. As you all know Zackery and Christian, our two handsome teenagers have Cystic Fibrosis. They were both diagnosed as babies.
Zackery is 19 and Christian is 17. They both are actually doing fairly well thanks to Trikafta!! We have had some minor complications here and there but pretty good overall. Christian's lung function remains in the high 90s lower hundreds!! Zackery's has also remained steady. Both boys still rely on their feeding tubes to help maintain their weight, but they handle it very well. Zackery graduated high school back in May. He is currently doing a transition class which will help him prepare for his future. Christian is a junior in high school and plans to attend technical college after high then onto a bigger college to persue his career in designing of some sort!!
There is currently no cure for Cystic Fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with Cystic Fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Zackery is 19 and Christian is 17. They both are actually doing fairly well thanks to Trikafta!! We have had some minor complications here and there but pretty good overall. Christian's lung function remains in the high 90s lower hundreds!! Zackery's has also remained steady. Both boys still rely on their feeding tubes to help maintain their weight, but they handle it very well. Zackery graduated high school back in May. He is currently doing a transition class which will help him prepare for his future. Christian is a junior in high school and plans to attend technical college after high then onto a bigger college to persue his career in designing of some sort!!
There is currently no cure for Cystic Fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with Cystic Fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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