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My Great Strides Story

Amanda Jones

Fundraising for Charlotte Great Strides 2026

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Amanda Jones

To my friends and family,

I am writing this today with a heart full of pride and a clear mission. My daughter, Livi, has spent her life overcoming obstacles that most people couldn't imagine. Today, she is a freshman at the University of Florida, pursuing a degree in Civil Engineering.

If you know Livi, you know her spirit: there is no challenge she will not accept, and no opportunity she will pass on. She lives life to its absolute fullest, serving as a constant inspiration to me and everyone lucky enough to know her.

Why We Fight

Livi’s success is not just a result of her own incredible strength; it is a result of the medical advances made possible by the Cystic Fibrosis Foundation. Because of donors like you, the momentum of CF research has changed what "growing up with CF" looks like.

But we cannot stop now.

Despite the incredible progress, the reality remains: there is currently no cure for cystic fibrosis. * What is CF? It is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. It makes breathing a daily battle and leads to life-threatening infections and respiratory failure.

The Goal: Every person with CF is on a unique journey. While some have benefited from new treatments, like Livi, a long road lies ahead for far too many. We need a cure so that everyone with CF has the chance to live a long, healthy life.

Join the Battle

I am walking to change the reality of this disease for Livi and the thousands of others like her. We have the momentum—now we need the finish line.

By donating to my fundraising goal, you are directly funding the research and science needed to achieve our shared goal: a cure for every person living with CF.

Will you help us build a future without Cystic Fibrosis?

MAR
23

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.

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