At just a few days shy of two weeks old, Bastian was diagnosed with cystic fibrosis. It’s news no parent ever wants to receive. Bastian struggles with weight gain, so he’s on pediasure to add extra calories into his diet. He’s had repeated pseudomonas infections and finally got a clear culture after 13 months of fighting it. He’s still on tobramycin every other month as a precaution. He’s on seven medications, including four inhaled medications that he does twice a day along with his vest. Despite all of this, Bastian has remained the happiest baby. He has the best personality and loves making people laugh. He’s had to learn how to be resilient at such a young age, but he’s done it all with a smile on his face.

Cystic Fibrosis looks different for everyone, but something that remains the same is that there is no cure. This disease has come a long ways from what it once was thanks to preventative treatments and new medications, but it’s still taking lives and will continue to do so until there’s a cure.

On May 2nd, in Charlottesville, the Cystic Fibrosis Foundation is hosting their annual Great Strides event. It’s a walk-a-thon to raise money for research, clinical trials, and new drug development. Every cent raised gets them closer and closer to finding a cure. We’d love to have you join Bastian’s Brigade and walk with us to bring awareness to Cystic Fibrosis and those who battle this disease every day. You can find the information for how to donate or join our team pinned to the top of the page. Even if you just share Bastian’s Brigade to spread awareness and get the word out, that’d be incredible! We appreciate all of your support more than you could ever know💕