Liliana Lopez
Hello Friends and Family,
I am sure once you received this email you knew it was from me, Laila O. Lopez! If you don't remember, my mom is Lily Lopez.
As most of you may know, every year me, my family and friends walk 3 miles to help raise money for Cystic Fibrosis. We have been walking for the past 15 years and don't plan on stopping until CF stands for CURE FOUND.
There is currently no cure for cystic fibrosis :(
I also like to give updates on how I am doing. So unfortunately I now have CFRD and that means Cystic Fibrosis Related Diabetes. Not only do I take pills with my food but now i give myself insulin. This was recently diagnosed so I am still trying to adjust to this new routine. My lungs have been ok off and on. So a few times I had to do extra treatments and take more antibiotics. Even though they have come out with a new medication called Trikafta, I unfortunately do not qualify for it. Why is that? I have a rare mutation and this medication is for those with a certain mutation called the Delta F508.
On a happier note, I currently play softball at school and made the JV team! I am also almost done with my Freshman year of high school! :) Time sure is flying by!
Here comes the most important question.. Can we count on you to donate? Any amount is appreciated!
Thank you!
Laila O. Lopez &
TEAM L.O.L.
I am sure once you received this email you knew it was from me, Laila O. Lopez! If you don't remember, my mom is Lily Lopez.
As most of you may know, every year me, my family and friends walk 3 miles to help raise money for Cystic Fibrosis. We have been walking for the past 15 years and don't plan on stopping until CF stands for CURE FOUND.
There is currently no cure for cystic fibrosis :(
I also like to give updates on how I am doing. So unfortunately I now have CFRD and that means Cystic Fibrosis Related Diabetes. Not only do I take pills with my food but now i give myself insulin. This was recently diagnosed so I am still trying to adjust to this new routine. My lungs have been ok off and on. So a few times I had to do extra treatments and take more antibiotics. Even though they have come out with a new medication called Trikafta, I unfortunately do not qualify for it. Why is that? I have a rare mutation and this medication is for those with a certain mutation called the Delta F508.
On a happier note, I currently play softball at school and made the JV team! I am also almost done with my Freshman year of high school! :) Time sure is flying by!
Here comes the most important question.. Can we count on you to donate? Any amount is appreciated!
Thank you!
Laila O. Lopez &
TEAM L.O.L.
MAY
12
12
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