I was diagnosed with Cystic Fibrosis at 2 weeks old. Even though I'm just 5.5, I've become very familiar with my daily CF routine. I take multiple pills every meal to help aid digestion - taking over 200 pills a week. I does several breathing treatments a day to help thin the mucus in my body and fight infections. These take about 1 hour a day. Every quarter I visit Lurie Children's Hospital to meet with my team: pulmonologist, respiratory therapist, dietician, physical therapist, and more. These visits last upwards of 3 hours, but we are lucky to have such a specialized team with dedicated support.

The CF Foundation continues to explore the most promising science to help all of those living with CF. More than 10 therapies have been approved, which have helped add decades to the lives of people with the disease. While we now have life-changing medical treatments for many people with CF, some people with CF do not respond to these medications. 

While researchers have made great strides over the years, there is still NO CURE and more research is needed. Beyond a cure, the CF Foundation is doing all it can to help patients and families gain access to the best care, as well as navigate insurance, financial, mental health and legal services.

Our family had chosen to participate in our local Great Strides walk benefitting the Cystic Fibrosis Foundation. Thanks for your support! 

-Vincent

Follow our journey on Instagram: @vincentvgge