My CF Cycle for Life Story
Hal Lusk
Fundraising for Chicago CF Cycle for Life
Hal Lusk
The 2025 Cycle for Life Bike Ride will mark the 32nd year of Team Lusk’s support in raising funds for the Cystic Fibrosis Foundation!
In 1994, cystic fibrosis (CF) first touched our family when our daughter, Erin, was diagnosed with CF soon after her birth. In November of 1996, our second daughter, Colleen, was born and immediately diagnosed with CF.
Colleen passed away on October 24, 2013 from cystic fibrosis. Colleen was a junior at Munster High School and would have turned 28 years old last November 18. Colleen fought bravely through many obstacles during her battle with cystic fibrosis. Through it all Colleen maintained a positive attitude and a strong desire to live life to its fullest. We miss Colleen every minute of every day but we take solace in knowing that she can finally breathe easy and be free of all the pain she endured because of her CF.
Erin turned 31 years old in March and just finished her 8th year of teaching first grade at Elliott Elementary School in Munster. In the Fall of 2019, Erin began taking a new CF drug named Trikafta. Trikafta treats cystic fibrosis at the genetic level and it has been a game changer. Erin has required no hospitalizations, has increased strength and stamina, and is breathing easier. This is a result of the support and contributions from our friends and family like you! But our work is not done.
Erin continues to require numerous daily medications and treatments. She will continue all of these for the rest of her life. CF is a genetic disorder that causes the accumulation of thick mucus in the lungs and around the pancreas, causing suffocation and infection. Over the past several years, the progress that has been made toward finding a cure and treating the disorder have been amazing. We believe that the cure we’re seeking is close, but we must continue to fund the research, which has already brought us this far.
After participating in the CF Foundations Great Strides Walk for 30 years, 2024 was the first year that TEAM LUSK began supporting the Cystic Fibrosis Foundation’s Cycle for Life bike ride for a cure. With the support of our family and friends we hope to continue in our fight against Cystic Fibrosis.
With your help, we will continue to fight in honor of Colleen and for Erin’s future. Please help us and the 40,000 other people with CF in this country by supporting TEAM LUSK.
With Love and Gratitude,
Hal, Suzanne, Erin & our angel Colleen
In 1994, cystic fibrosis (CF) first touched our family when our daughter, Erin, was diagnosed with CF soon after her birth. In November of 1996, our second daughter, Colleen, was born and immediately diagnosed with CF.
Colleen passed away on October 24, 2013 from cystic fibrosis. Colleen was a junior at Munster High School and would have turned 28 years old last November 18. Colleen fought bravely through many obstacles during her battle with cystic fibrosis. Through it all Colleen maintained a positive attitude and a strong desire to live life to its fullest. We miss Colleen every minute of every day but we take solace in knowing that she can finally breathe easy and be free of all the pain she endured because of her CF.
Erin turned 31 years old in March and just finished her 8th year of teaching first grade at Elliott Elementary School in Munster. In the Fall of 2019, Erin began taking a new CF drug named Trikafta. Trikafta treats cystic fibrosis at the genetic level and it has been a game changer. Erin has required no hospitalizations, has increased strength and stamina, and is breathing easier. This is a result of the support and contributions from our friends and family like you! But our work is not done.
Erin continues to require numerous daily medications and treatments. She will continue all of these for the rest of her life. CF is a genetic disorder that causes the accumulation of thick mucus in the lungs and around the pancreas, causing suffocation and infection. Over the past several years, the progress that has been made toward finding a cure and treating the disorder have been amazing. We believe that the cure we’re seeking is close, but we must continue to fund the research, which has already brought us this far.
After participating in the CF Foundations Great Strides Walk for 30 years, 2024 was the first year that TEAM LUSK began supporting the Cystic Fibrosis Foundation’s Cycle for Life bike ride for a cure. With the support of our family and friends we hope to continue in our fight against Cystic Fibrosis.
With your help, we will continue to fight in honor of Colleen and for Erin’s future. Please help us and the 40,000 other people with CF in this country by supporting TEAM LUSK.
With Love and Gratitude,
Hal, Suzanne, Erin & our angel Colleen
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