Brendan Murphy
As many of you know, and for those of you that do not, a little over 8 years ago, our son, Conor, was diagnosed with Cystic Fibrosis. While the news was difficult to digest, we were immediately adopted into a community of people(CF Foundation), whose focus was on helping ease our worries by educating us on the disorder, drugs available and in the pipeline , networking with other families with CF in the household, providing programs for free multi-vitamins and co-pay assistance on meds.
The Cystic Fibrosis Foundation has made significant contributions to the research of development of drugs used to treat this genetic disorder. Conor is lucky enough to have been on Trikafta since age of 5.
Conor is a warrior, loves all sports, mainly basketball and football, in November he won his first 5k race running it in 25 mins, and he will be going for gold at the Ridge Run on Memorial Day. We are lucky he has the resources available to live a healthy lifestyle. However, healthy does not come easy, Conor wakes up every morning and does a 30 minute vest treatment that helps with airway clearance, followed by 20 minute Nebulizer treatment, throughout the day Conor is required to take between 25-30 pills, some of these our meds to combat effects of his condition others to help supplement enzymes his body doesn't release naturally. Conor ends his day with another 30 minutes airway clearance treatment before bed. Conor is 8 years 5 months old and has never complained once about his treatments.
This October my lovely wife and I are running the Chicago Marathon to help raise money to find a cure for CF and to help raise awareness of the disorder. CF is a genetic, life-shortening disorder that can have life-threatening impact on the lungs and digestive system.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
The Cystic Fibrosis Foundation has made significant contributions to the research of development of drugs used to treat this genetic disorder. Conor is lucky enough to have been on Trikafta since age of 5.
Conor is a warrior, loves all sports, mainly basketball and football, in November he won his first 5k race running it in 25 mins, and he will be going for gold at the Ridge Run on Memorial Day. We are lucky he has the resources available to live a healthy lifestyle. However, healthy does not come easy, Conor wakes up every morning and does a 30 minute vest treatment that helps with airway clearance, followed by 20 minute Nebulizer treatment, throughout the day Conor is required to take between 25-30 pills, some of these our meds to combat effects of his condition others to help supplement enzymes his body doesn't release naturally. Conor ends his day with another 30 minutes airway clearance treatment before bed. Conor is 8 years 5 months old and has never complained once about his treatments.
This October my lovely wife and I are running the Chicago Marathon to help raise money to find a cure for CF and to help raise awareness of the disorder. CF is a genetic, life-shortening disorder that can have life-threatening impact on the lungs and digestive system.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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