My Great Strides Story
Carol Vance
Fundraising for Colorado Springs Great Strides 2026
Carol Vance
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Fortunately our 3 are doing very well mostly because they are so good about taking all their medications, dr visits, vest therapies and etcetera. Andrew and Kelsey are so good about keeping them active outside and in and keeping their lungs healthy. Because they are out and about so much there is the occasional illness which requires major strong antibiotics. This of course is not good if it happens often. One of the things the CF Foundation is working on is finding new antibiotics that work well with CF patients.
Reagan 13 and Kennedy 9 are still both competing in Wake Surfing contests all around the country. They go when they can mostly in the summer although they just participated in one in Arizona. They also do school sports and swim. Duke has even started swim lessons and seems to like the water.
The girls are still on Trikafta that is working very well and Duke is on Orkambi and will be able to be on Trikafta when he is 2. He just turned one on March 28.
Hobey and I have plans to go to CO for the walk in May. We don't see the kids enough but plans are to have a full Vance Camp in Minocqua for at least a day this summer. All three families will attend.
Thank you to those who have already given.
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