Carolyn Vache
Dear Family & Friends,
It’s Great Strides time of year again!
As most of you know, our grandson, Greyson, has Cystic Fibrosis. He was diagnosed with CF at two weeks old and he began therapeutic treatments right away. Today Greyson is an active 8½ year old boy who loves going to third grade, participating in the Lego club at school and will again play little league baseball this spring.
The Cystic Fibrosis Foundation’s largest national fundraising event is Great Strides, with walks being held throughout the United States! Great Strides Denver is on Saturday, May 10th, 9 am at Sloan's Lake Park, 1700 N Sheridan Blvd, Denver, CO 80212. We would love to have you join Team Super G for this easy walk. Last year Team Super G raised over $25,000! And with your help we can do it again!
The Cystic Fibrosis Foundation’s mission is to cure cystic fibrosis and raise awareness about this rare, genetic, life-shortening disease that makes it difficult to breathe. The Foundation leads the way in research and drug development. Nearly every Cystic Fibrosis drug on the market today has been researched and developed by the Foundation.
We just attended the Washington/Alaska CF Foundation Annual Meeting where we listened to the renowned Dr.Christopher Goss, the Co-Executive Director of the Cystic Fibrosis Therapeutics Development Network Coordinating Center at the University of Washington Medical Center talk about the newest drug developed with funding from the CF Foundation, Alyftrek. This CFTR modulator is a triple combination medication in a once daily dose approved for patients 6 and older. Alyftrek has been shown to be effective in improving lung function, as well as reducing sweat chloride in patients with CF.
We also heard about the many drugs and therapies the CF Foundation is donating millions of dollars towards developing in the search for a cure, it’s truly amazing what is happening in the world of research. The Cystic Fibrosis Foundation has been called “the greatest story in medicine” due to its groundbreaking approach to raising funds that are allowing the life changing treatments for those with CF and moving toward a cure for this life-threatening disease. Sadly, about 8% of people with CF have nonsense genes for which there are no or very limited therapies. The CF Foundation is committed to finding a cure for all people that suffer from this disease.
You can be a part of the magic that helps make those miracles possible, as we turn the corner into genetic treatments and the path to a cure. Please join Team Super G and the CF Foundation to find a cure to help all people with Cystic Fibrosis live longer, healthier lives and to pursue their dreams. If you are unable to attend the walk and would like to support the CF Foundation, please consider a donation. Any amount will make a difference.
Click on the Register button above to register for the walk and the Donate button above to make a tax-deductible donation.
Thank you so very much,
Carolyn & Dan
It’s Great Strides time of year again!
As most of you know, our grandson, Greyson, has Cystic Fibrosis. He was diagnosed with CF at two weeks old and he began therapeutic treatments right away. Today Greyson is an active 8½ year old boy who loves going to third grade, participating in the Lego club at school and will again play little league baseball this spring.
The Cystic Fibrosis Foundation’s largest national fundraising event is Great Strides, with walks being held throughout the United States! Great Strides Denver is on Saturday, May 10th, 9 am at Sloan's Lake Park, 1700 N Sheridan Blvd, Denver, CO 80212. We would love to have you join Team Super G for this easy walk. Last year Team Super G raised over $25,000! And with your help we can do it again!
The Cystic Fibrosis Foundation’s mission is to cure cystic fibrosis and raise awareness about this rare, genetic, life-shortening disease that makes it difficult to breathe. The Foundation leads the way in research and drug development. Nearly every Cystic Fibrosis drug on the market today has been researched and developed by the Foundation.
We just attended the Washington/Alaska CF Foundation Annual Meeting where we listened to the renowned Dr.Christopher Goss, the Co-Executive Director of the Cystic Fibrosis Therapeutics Development Network Coordinating Center at the University of Washington Medical Center talk about the newest drug developed with funding from the CF Foundation, Alyftrek. This CFTR modulator is a triple combination medication in a once daily dose approved for patients 6 and older. Alyftrek has been shown to be effective in improving lung function, as well as reducing sweat chloride in patients with CF.
We also heard about the many drugs and therapies the CF Foundation is donating millions of dollars towards developing in the search for a cure, it’s truly amazing what is happening in the world of research. The Cystic Fibrosis Foundation has been called “the greatest story in medicine” due to its groundbreaking approach to raising funds that are allowing the life changing treatments for those with CF and moving toward a cure for this life-threatening disease. Sadly, about 8% of people with CF have nonsense genes for which there are no or very limited therapies. The CF Foundation is committed to finding a cure for all people that suffer from this disease.
You can be a part of the magic that helps make those miracles possible, as we turn the corner into genetic treatments and the path to a cure. Please join Team Super G and the CF Foundation to find a cure to help all people with Cystic Fibrosis live longer, healthier lives and to pursue their dreams. If you are unable to attend the walk and would like to support the CF Foundation, please consider a donation. Any amount will make a difference.
Click on the Register button above to register for the walk and the Donate button above to make a tax-deductible donation.
Thank you so very much,
Carolyn & Dan
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