Our Breathe Team Story to Cure Cystic Fibrosis
Vocal Strides
Fundraising for Disneyland® Halloween Half Marathon Weekend
Vocal Strides
At the age of 22, after a lifetime of illness, Heather was diagnosed with cystic fibrosis. As a child, it primarily affected her pancreas, and then at age 35, her lungs started to decline.
When she was diagnosed, the median age for CF, was 30. Today thanks to incredible advancements in medical research and funding from the Cystic Fibrosis Foundation, babies born in the past few years with CF, are expected to live up to 60! Sadly, there are still so many people with CF who will never reach that age. Every day, the CF Foundation is working on new medications, treatments and striving toward hopefully someday, finding a cure!
She has spent her entire life on so many medications every day, lung treatments, CF modulators, restricted diet, and suffering from severe anxiety and panic attacks. CF is heartbreaking and debilitating, but those with it, are strong and determined and hopeful.
On September 6, 2025, our family will be running with the CF Breathe Team in the Disneyland 10k, to raise money for cystic fibrosis! Not only does it fill our hearts with such joy to run together, and to help raise funds for the Cystic Fibrosis Foundation, the very organization who pays the salaries of Heather's CF doctors, funds research for new medications that have changed her life, and all of the incredible support that they provide for everyone with CF and their families, but having this incredible goal for Heather of training to run a 10k race, 6.2 miles, with cystic fibrosis, is keeping her healthier and stronger, every day!!
Thank you to everyone who is helping us to reach our goal. We can't tell you how much it means to us! Every step we run, brings us closer to CF standing for CURE FOUND!
When she was diagnosed, the median age for CF, was 30. Today thanks to incredible advancements in medical research and funding from the Cystic Fibrosis Foundation, babies born in the past few years with CF, are expected to live up to 60! Sadly, there are still so many people with CF who will never reach that age. Every day, the CF Foundation is working on new medications, treatments and striving toward hopefully someday, finding a cure!
She has spent her entire life on so many medications every day, lung treatments, CF modulators, restricted diet, and suffering from severe anxiety and panic attacks. CF is heartbreaking and debilitating, but those with it, are strong and determined and hopeful.
On September 6, 2025, our family will be running with the CF Breathe Team in the Disneyland 10k, to raise money for cystic fibrosis! Not only does it fill our hearts with such joy to run together, and to help raise funds for the Cystic Fibrosis Foundation, the very organization who pays the salaries of Heather's CF doctors, funds research for new medications that have changed her life, and all of the incredible support that they provide for everyone with CF and their families, but having this incredible goal for Heather of training to run a 10k race, 6.2 miles, with cystic fibrosis, is keeping her healthier and stronger, every day!!
Thank you to everyone who is helping us to reach our goal. We can't tell you how much it means to us! Every step we run, brings us closer to CF standing for CURE FOUND!
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