Kayla Sims
Our daughter Hannah was diagnosed May 17, 2024 at just a few weeks old with Cystic Fibrosis. We spent a few weeks at Childrens in June due to her first and hopefully last CF exacerbation due to an infection of Pseudomonas. Hannah is doing so well! Our plan is for Hannah to start Tricafta receptor therapy treatment on her Second Birthday. We understand that others have chosen to help fund research, and participated in studies to make this possible for us. For that we are so grateful. Our desire is to continue to raise money for those who don't yet have a treatment option. We want to help “move the fence” so they can be included in treatment options specific to them. Thank you for giving and making this possible for our little girl.
With Love and Thanks, Josh, Kayla, Elisha and Hannah.
Please keep reading for more information on CF.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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