Elise Free
We have an almost 20 year old because of the Cystic Fibrosis Foundation and all of you who have donated year after year!!!
I cannot express my gratitude enough. "Froggy" as Quinn has been called since she was a tadpole is doing great! When she was diagnosed at 4 months, I could never have imagined that I'd have a healthy child (okay technically adult)!
Quinn is currently taking a medication called Trikafta that has been a game changer. It treats CF on a cellular level. Woo hoo! Her pulmonary function tests, BMI, everything is normal. It's been a long journey with some bumps along the way, but having the support of all of you and the CFF has helped tremendously.
But...there's always a but. Not everyone's CF mutation is the same. This drug doesn't work for everyone. And it's not a cure. For some, the side effects are worse than the benefits. We need a cure. We need more research, more treatments, more meds so that EVERYONE benefits.
Here's some info on CF in case you aren't familiar:
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Please make a donation, not only for Froggy but everyone with cystic fibrosis. I may be biased but the CF community is the absolute most amazing, wonderful group of humans. And the folks who work for the CFF (it makes me teary thinking about them because they are SO devoted and work tirelessly for our CF families) are so diligent about raising funds and making sure every dollar counts.
Every single dollar matters. I always say $5 buys the Petri dish that the cure will be found in. I am biased but I cannot imagine a greater cause, a better non-profit and of course a more important kid (okay adult) than Froggy. Thank you all in advance for your donations!!!
I cannot express my gratitude enough. "Froggy" as Quinn has been called since she was a tadpole is doing great! When she was diagnosed at 4 months, I could never have imagined that I'd have a healthy child (okay technically adult)!
Quinn is currently taking a medication called Trikafta that has been a game changer. It treats CF on a cellular level. Woo hoo! Her pulmonary function tests, BMI, everything is normal. It's been a long journey with some bumps along the way, but having the support of all of you and the CFF has helped tremendously.
But...there's always a but. Not everyone's CF mutation is the same. This drug doesn't work for everyone. And it's not a cure. For some, the side effects are worse than the benefits. We need a cure. We need more research, more treatments, more meds so that EVERYONE benefits.
Here's some info on CF in case you aren't familiar:
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Please make a donation, not only for Froggy but everyone with cystic fibrosis. I may be biased but the CF community is the absolute most amazing, wonderful group of humans. And the folks who work for the CFF (it makes me teary thinking about them because they are SO devoted and work tirelessly for our CF families) are so diligent about raising funds and making sure every dollar counts.
Every single dollar matters. I always say $5 buys the Petri dish that the cure will be found in. I am biased but I cannot imagine a greater cause, a better non-profit and of course a more important kid (okay adult) than Froggy. Thank you all in advance for your donations!!!
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