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My Great Strides Story

Lucy Carey

Fundraising for Des Moines Great Strides

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Lucy Carey

Our granddaughter Tula, as most of you know, was diagnosed a few days after birth with cystic fibrosis, a genetic life-shortening disease devastating the lungs, pancreas, and other vital organs. Every person born with CF is on a unique journey and experiences this challenging disease differently. 

Tula will be 15 on June 28 and is completing 9th grade; she enjoys spending time with her friends and family in Hillsborough, NC. Enzymes before meals and snacks help her to digest and absorb nutrients, and daily medications fight respiratory infections. Her overall health has been good since the last walk, but digestive issues impact her daily life. 

Nearly every CF drug available was made possible because of the support of the Cystic Fibrosis Foundation. There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality. 
You have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.   


 

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$810
raised of $2,000 goal
 

Achievements

Leader

Team Tula's Capes and Tiaras

$810
$2,500

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Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.