My Great Strides Story
Caroline LeMay
Fundraising for Easton Great Strides 2026
Caroline LeMay
May is Cystic Fibrosis Awareness Month. Every year, I like to share how CF effects Russell.
When you see Russell, you would never know that he has Cystic Fibrosis. He is an overall healthy kid and we are so grateful for that. But what you don't see, is what Russell needs to stay healthy on a daily basis.
Russell is pancreatic insufficient, he takes enzymes with meals and snack. He can't eat anything that contains fat without having his pills first. He also can't have too many enzymes in a day. This makes it challenging at times for a growing boy who loves to eat! Russell has learned that if he already had a snack, and it's not a meal time, he can have things like fruits and veggies or anything without fat as a snack. The enzymes help his body to absorb proper nutrition which allows him to gain weight appropriately. Without it, he would not be thriving in the 98th percentile!
Russ needs nebulizer treatments and chest PT when sick. His sick plan consists of Albuterol, Hypertonic Saline and chest PT, four hours apart. Each treatment session lasts about 30 minutes long. Although Russ is a pro at his treatment time, sick days can feel busy and overwhelming for all of us. We are grateful that nice wetaher is on its way and hopefully the sicknesses can slow down.
As I had shared before, Russell is no longer taking Trikafta, a modulator that have been greatly beneficial to people with CF. We hope that when he qualifies for the next modulator, we will see a positive impact for him.
This is why fundraising is so important to us. The only reason why these medications exist is because people like you have donated to the Cystic Fibrosis Foundation. CF is not federally funded, it is funded through fundraising. They are working towards a cure and your donations matter! Any amount will help make a difference. Not just in Russell's life but so many others.
Thank you in advance for your support and we're so grateful that Russell has family and friends who truly care about him and his future.
There is currently no cure for cystic fibrosis and too many people with CF die young. I'm walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
When you see Russell, you would never know that he has Cystic Fibrosis. He is an overall healthy kid and we are so grateful for that. But what you don't see, is what Russell needs to stay healthy on a daily basis.
Russell is pancreatic insufficient, he takes enzymes with meals and snack. He can't eat anything that contains fat without having his pills first. He also can't have too many enzymes in a day. This makes it challenging at times for a growing boy who loves to eat! Russell has learned that if he already had a snack, and it's not a meal time, he can have things like fruits and veggies or anything without fat as a snack. The enzymes help his body to absorb proper nutrition which allows him to gain weight appropriately. Without it, he would not be thriving in the 98th percentile!
Russ needs nebulizer treatments and chest PT when sick. His sick plan consists of Albuterol, Hypertonic Saline and chest PT, four hours apart. Each treatment session lasts about 30 minutes long. Although Russ is a pro at his treatment time, sick days can feel busy and overwhelming for all of us. We are grateful that nice wetaher is on its way and hopefully the sicknesses can slow down.
As I had shared before, Russell is no longer taking Trikafta, a modulator that have been greatly beneficial to people with CF. We hope that when he qualifies for the next modulator, we will see a positive impact for him.
This is why fundraising is so important to us. The only reason why these medications exist is because people like you have donated to the Cystic Fibrosis Foundation. CF is not federally funded, it is funded through fundraising. They are working towards a cure and your donations matter! Any amount will help make a difference. Not just in Russell's life but so many others.
Thank you in advance for your support and we're so grateful that Russell has family and friends who truly care about him and his future.
There is currently no cure for cystic fibrosis and too many people with CF die young. I'm walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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