As most of you all know, I am 37 years old living with cystic fibrosis. CF is a rare genetic disease that affects many different parts of the body but really focuses on the lungs and digestive system. Because of that, I take medicine every time I eat and do breathing treatments and take other meds to assist with my breathing symptoms. The research and treatments have come a long way since I was diagnosed at 6 years old, but we still don’t have a cure yet.

Because CF is so rare, there is no government funding for research to find a cure. It is due to this, that we work so hard to fund raise. We have made so much progress, but we aren’t done yet! There is still work to do!