My Great Strides Story
Germaine Souik
Fundraising for Fond du Lac Great Strides
Germaine Souik
Cystic Fibrosis (CF) is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Our son, Jacob, was born in 1983 and diagnosed with CF at the age of three months. At that time the median age of survival for someone with CF was 20. For babies born with it between 2019 and 2023 that age has increased to 61. Jacob is now 41.
In late 2019 Jacob began taking a new drug called Trikafta. Trikafta is effective for a large share of the CF population by reducing the amount of mucus in their lungs. Since taking this drug he has not been hospitalized.
Research continues to find something similar to help those for whom Trikafta isn't effective, and to ultimately find a cure for cystic fibrosis.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Our son, Jacob, was born in 1983 and diagnosed with CF at the age of three months. At that time the median age of survival for someone with CF was 20. For babies born with it between 2019 and 2023 that age has increased to 61. Jacob is now 41.
In late 2019 Jacob began taking a new drug called Trikafta. Trikafta is effective for a large share of the CF population by reducing the amount of mucus in their lungs. Since taking this drug he has not been hospitalized.
Research continues to find something similar to help those for whom Trikafta isn't effective, and to ultimately find a cure for cystic fibrosis.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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