My Great Strides Story
Sarah Desotell
Fundraising for Fond du Lac Great Strides
Sarah Desotell
Hazel is 15 years old, and wearing it well :) Hazel continues to perform in multiple choirs and theater performances, and was thrilled to learn the ropes of being a "techie" for a youth theater group this year. It's been a big year of accomplishments: Hazel sang with their youth choir at Carnegie Hall! Plus school dances, Disney, and all the things... Through it all, Hazel's lungs are doing ok. There have been many days where Hazel did lung treatments all day long when her lungs needed more help to clear out the mucus (actually about 4-5 hours throughout the day). On healthy days its just under one hour of lung treatments. Cystic Fibrosis is a genetic condition with salt mismanagement at the cellular level, affecting digestion and lungs among other things. The sticky mucus throughout Hazel's body blocks her pancreas ducts so pills for calorie absorption are life-saving, while daily nebulizers and lung-shaking technology are also essential for loosening up bacteria-collecting mucus in Hazel's lungs.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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