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Evelyn's CF Story

Jacob Schwartz
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Jacob Schwartz

Evelyn was tested for Cystic Fibrosis through her Newborn Screening and was 'officially diagnosed' through her sweat test at just 4 weeks old in 2016. Evelyn experienced many complications throughout her first few years of life. Multiple exasperations, hospital stays, extra treatments, and more...

Now at 8 years old, with the help of her amazing team at Children's Hospital Milwaukee, the Cystic Fibrosis Foundation, and all the support from her family and friends, she is THRIVING! She is dancing competitively in two different categories, danced in The Nutcracker Ballet last December, does softball, swimming, and loves to just be outside.

In her free time, you might find her reading books, chasing her animals, riding her bike, or playing with her little sister.

She started Trikafta right around her 6th birthday and she had not had a hospitalization since she was 3. She unfortunately, became extremely sick last summer (7yr/o) and was hospitalized after trying treatments at home for 30+ days. Our previous hospitalizations were always a minimum of 14 days. This time? 7 DAYS! She responded to treatments much quicker and was able to be discharged and continue the final seven days on oral meds at home.

It is because of the PHENOMINAL things that the CF Foundation does, that we have been able to get Evelyn the help and treatments she needs. Her PFT (pulmonary function test) on January 9th was the best it has been since last spring, and she is back on track!

Our family as a whole is so appreciative and grateful to those who support the CF Foundation. It is with the help of others that we can raise awareness and funds for this CF journey that we live every day.

Evelyn is a true FIGHTER and even though she has CF, she refuses to let CF have her! She is so excited to be Fond du Lac's 2025 Ambassador!

 

There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.

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$125
raised of $50,000 goal
 

Achievements

Leader

Team Breathe for Evelyn

$125
$5,000

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.