Edit in profile section

My Great Strides Story

Ellie Huff

Fundraising for Gateway Chapter Great Strides

Donate

Ellie Huff

We are excited to walk for Cooper at Great Strides this year and hope you will join us! It would mean so much to Derringer, Cooper and me if you walk with us, no matter what you choose to donate.

 

Our sweet son Cooper was diagnosed with Cystic Fibrosis in August 2024 when he was 12 days old. He was born 6 weeks early with a severe case of a common complication of CF - meconium ileus - which required 20 centimeters of his intestines to be removed just a few hours after birth. He spent his first 46 days in the NICU at St. Louis Children’s Hospital. 

 

Every day, Cooper takes 26 pills, 2 vitamins, and spends 40 minutes doing manual chest physical therapy to help clear his lungs. For the rest of his life, he will rely on many genetic modulator drugs, vitamins and therapies to help him digest food, fend off infection, and keep his lungs healthy. We are so grateful for the work of the CF Foundation and the incredible progress that has been made in recent years, but these medicines are not a cure. We want to play a part in helping fund genetic therapies, our best hope for a cure for Cooper the Trooper and all other babies born with CF.

Comments

$500
raised of $500 goal
 

Achievements

Leader

Team Cooper

$9,050
$3,500

Recent Donations

Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.