My Great Strides Story
Amy Laz
Amy Laz
11 days after my son, Nathaniel, was born, I received a phone call no parent ever wants to receive. I got the call in the morning on a Friday from our pediatrician informing me that Nathaniel was diagnosed with a condition called Cystic Fibrosis, that it is a chronic life shortening disease. I barely held myself together through the rest of the phone call. As soon as I got off the phone call, my husband returned home from a run and I had to break the news to him. We were heartbroken to say the least.
We spent Friday and Saturday wallowing and by Sunday we started our research. We were told to not look at any information outside of the Cystic Fibrosis Foundation so that we were getting the most up to date and correct information relative to the disease.
Monday we met with Nate's Cystic Fibrosis Team and we were ready to do whatever it was we needed to do.
Since then our son has turned two, started Trikaftka, and has been living a happy and healthy life, though he is still a string bean. We have been extremely fortunate with our son's health that we haven't even had a stay in the hospital. We owe a lot of this to his CF Team and the Cystic Fibrosis Foundation for the support we have received along the way.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
We spent Friday and Saturday wallowing and by Sunday we started our research. We were told to not look at any information outside of the Cystic Fibrosis Foundation so that we were getting the most up to date and correct information relative to the disease.
Monday we met with Nate's Cystic Fibrosis Team and we were ready to do whatever it was we needed to do.
Since then our son has turned two, started Trikaftka, and has been living a happy and healthy life, though he is still a string bean. We have been extremely fortunate with our son's health that we haven't even had a stay in the hospital. We owe a lot of this to his CF Team and the Cystic Fibrosis Foundation for the support we have received along the way.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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