When we welcomed Otto into the world, we had no idea our lives were about to change in ways we never expected. We didn’t know we were carriers of cystic fibrosis. We didn’t know anything was wrong.

Then his newborn screening came back abnormal.

Suddenly, instead of simply soaking in those sweet newborn days, we were learning new medical terms, meeting specialists, and trying to understand what cystic fibrosis meant for our baby. The shock was overwhelming. The fear was real. It was not the “normal” newborn experience we imagined.

Instead of just bottles and bedtime routines, we learned how to give daily medications, inhalers, and chest PT. We learned how to advocate. We learned how strong our little boy is.

At seven months old, Otto was hospitalized. That was one of the hardest moments we’ve faced as parents. Watching your baby struggle is something no parent is ever prepared for. But even then, he showed us what strength looks like.

Now, at one year old, Otto has started Orkambi and uses a therapy vest for his chest PT. We are so grateful for the advancements in CF care that are giving our son more breath, more strength, and more future.

Cystic fibrosis is part of our story — but it does not define Otto.

He is joy.

He is resilience.

He is living his life “Fully Ottomatic”

We want to walk to raise awareness, support research and fight for a cure.

Most of all, we walk for Otto. 💛