Reba Cole
December 2, 2008, the day I became a CF mom and advocate. July 10, 2023, the day I discovered I'd been a CF patient all along.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Like each person with Cystic Fibrosis or any chronic illness, our journey is unique and no two days for Kylea and I are quite the same. As a small child with CF, I made it my mission for Kylea to know that her life was to be lived without limits and that CF would not contain her dreams and her experiences. Now, that I find myself at nearly two years post diagnosis, I'm reminded of those same words and inspired to live life without boundaries more than ever. Each day more precious than the one before.
35 years was the median life expectancy at the time of Kylea's diagnosis and here I am at 40. Grateful for each breath, each new day and year of life, each new experience, and every milestone. Thank you to everyone of you who contributes, who fundraises, who does this incredible work. Thank you for saving our lives and giving us more tomorrows. Thank you for allowing for a today and tomorrow I never thought possible.
For Daveion and Kaia, always in our hearts.
With love and gratitude
-Reba
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Like each person with Cystic Fibrosis or any chronic illness, our journey is unique and no two days for Kylea and I are quite the same. As a small child with CF, I made it my mission for Kylea to know that her life was to be lived without limits and that CF would not contain her dreams and her experiences. Now, that I find myself at nearly two years post diagnosis, I'm reminded of those same words and inspired to live life without boundaries more than ever. Each day more precious than the one before.
35 years was the median life expectancy at the time of Kylea's diagnosis and here I am at 40. Grateful for each breath, each new day and year of life, each new experience, and every milestone. Thank you to everyone of you who contributes, who fundraises, who does this incredible work. Thank you for saving our lives and giving us more tomorrows. Thank you for allowing for a today and tomorrow I never thought possible.
For Daveion and Kaia, always in our hearts.
With love and gratitude
-Reba
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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