Lily Toole
Our son Colt was diagnosed with cystic fibrosis when he was just 3 weeks old. Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They face the sobering prospect of a shortened lifespan.
While Colt is a happy, healthy little boy, he endures daily treatments to keep his lungs clear of infection and takes multiple pills every day to help him digest his food.
Last year when Colt turned 2, he became eligible for the relatively new but effective therapeutic drug combination known as “Trikafta,” which was developed with support from the Cystic Fibrosis Foundation and recently approved for certain patients aged 2-6. We are so lucky he's had access to this drug from such an early age. While there have been some incredible advancements made in the treatment of CF, he will live with the disease until a cure is found.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
While Colt is a happy, healthy little boy, he endures daily treatments to keep his lungs clear of infection and takes multiple pills every day to help him digest his food.
Last year when Colt turned 2, he became eligible for the relatively new but effective therapeutic drug combination known as “Trikafta,” which was developed with support from the Cystic Fibrosis Foundation and recently approved for certain patients aged 2-6. We are so lucky he's had access to this drug from such an early age. While there have been some incredible advancements made in the treatment of CF, he will live with the disease until a cure is found.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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