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Driving Miss Desi

Fundraising for Huntsville Great Strides

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Driving Miss Desi

On Saturday, May 17th, we’ll be gathering at Campus 805 Green Space for one of the most meaningful mornings of our year:
The Great Strides Tailgate + Walk in honor of Desi.

If you’ve come before, you know—it’s a Tailgate that is part walk, part breakfast hangout, part bounce house party, and ALL heart.

We’d love for you and your family to be there. Desi (now 9!) calls it “her walk ,” and your support means the world to her—and to us!

But here’s what it’s really about:

Desi lives with cystic fibrosis—a life-shortening genetic disease that primarily affects the lungs, but also impacts the digestive system, reproductive system, and more. 

 *Desi knows A LOT about cystic fibrosis but we have not talked with her about the life expectancy aspect. As you can imagine, that is a heavy mental load for a child to carry. Please do not mention this part to your child when you are educating them on cystic fibrosis.


There is no cure.

However, thanks to generous donations and research funding, major progress is happening! We've experienced it!

In fact, Desi now takes a groundbreaking medication that didn’t exist when she was born. It’s one of several life-changing treatments made possible by those who give, tailgate/walk, and share.

We often say:

Money buys science.
Science buys years.
And years make memories.


We’ve seen it firsthand—and we want more years and memories for Desi, and for every child living with CF.

So here’s your official invite:
Where:
 Campus 805 Green Space
When: Saturday, May 17 at 9:00 AM (arrive by 9:20 to take a team photo!)
What to expect: Tailgating, yard games, bounce house, coffee, a big breakfast spread, a short walk, music, and a whole lot of community love.

Click below to sign up to join us, think of it as your RSVP :)  (Make sure you include family members' names at the end when prompted!)
-->click: Join our Team

This tailgate and walk is a moment of joy and hope in our year, and we’d love to share it with your family!

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Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.