Jammin' for Johnny
Welcome to Team Jammin' for Johnny! Our sweet boy Johnny was diagnosed with Cystic Fibrosis when he was just 2 weeks old. From every day thereafter, he has amazed us with his resilience, patience and bravery. His many medications and breathing treatments every day, the illnesses that linger longer, his hospital stays and more, have not phased his spirit one bit. He is a little spitfire, and we cannot wait to watch him grow! This year he started Trikafta and got his first vest. Big things! He's doing fantastic and we're so blessed by his fight and current health!
We have been completely overwhelmed with the amount of love, prayers and support we've received since Johnny's diagnosis, and over these past two-ish years. And while he's doing well, CF is an ever present part of his live and the fight will not be over until CF stands for Cure Found. The majority of the Cystic Fibrosis Foundation's fundraising efforts go towards research of new life-improving therapies and towards the ultimate cure. Literally every dollar we raise will continue towards these efforts, which will ultimately change Johnny's life for the better. We truly believe a cure is not far from reach!
Thank you so much for your love, support and prayers. We hope to see you on May 10th in KC!
Thank you so much for your love, support and prayers. We hope to see you on May 10th in KC!
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