Our Great Strides Story
Rebecca Thome
Fundraising for Lancaster Great Strides
Rebecca Thome
Order team shirts for Great Strides here: https://www.bonfire.com/the-millie-beans-2025/
Meet Emily!
Our daughter, Emily, was born with a rare, genetic disease called Cystic Fibrosis. Over the past two and a half years, our family has been inspired by Emily's strength and resilience. We have been fortunate to be eligible for many medications that treat some of the symptoms of the disease, and hopefully slow the progression. Medications like this take extensive funds and research to develop. We participate in Great Strides to raise both funds needed for additional research, as well as overall awareness towards ultimately finding a cure for CF.
What is Cystic Fibrosis?
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. We consider ourselves lucky in the fact that Emily is considered "pancreatic sufficient," meaning her pancreas functions normally, and she does not need added enzymes in order to digest vitamins and nutrients. For Emily, her CF affects mainly her lungs. For our family, it is critical to prevent Emily from catching respiratory infections, which could turn life-threatening or lead to lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Meet Emily!
Our daughter, Emily, was born with a rare, genetic disease called Cystic Fibrosis. Over the past two and a half years, our family has been inspired by Emily's strength and resilience. We have been fortunate to be eligible for many medications that treat some of the symptoms of the disease, and hopefully slow the progression. Medications like this take extensive funds and research to develop. We participate in Great Strides to raise both funds needed for additional research, as well as overall awareness towards ultimately finding a cure for CF.
What is Cystic Fibrosis?
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. We consider ourselves lucky in the fact that Emily is considered "pancreatic sufficient," meaning her pancreas functions normally, and she does not need added enzymes in order to digest vitamins and nutrients. For Emily, her CF affects mainly her lungs. For our family, it is critical to prevent Emily from catching respiratory infections, which could turn life-threatening or lead to lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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