Walk with our team to Cure Cystic Fibrosis

Aria’s Army…Jack’d Up

Fundraising for Lehigh Valley Great Strides

Donate

Aria’s Army…Jack’d Up

We are thrilled to have our Great Strides team, Aria's Army...Jack'dUp back again this year for the Lehigh Valley Great Strides Walk on Saturday, April 26! This will be our family's 13th year participating in the Cystic Fibrosis Foundation's Great Strides Walk. That means is it has been well over a decade since first receiving Aria's diagnosis during my pregnancy with her and over 9 years since receiving Jack's diagnosis when he was only a few days old. Yet somehow, the sting of those diagnoses remains fresh. When I think back to the day when we first received Aria's CF diagnosis, Brandon and I have never been more scared for what the future would hold for our sweet baby girl. We were new parents, new to this disease and terrified of the road we were about to walk. But throughout all of it, we were hopeful. A few years later, we welcomed our sweet Jack into the world and were told that, despite all of our wishing, hoping and praying, he too has CF. Once again, our world came crashing down around us and we were terrified, but still hopeful. We have fought alongside our babies every step of the way to do everything we can to keep them healthy, but the reality is their future and quality of life remains uncertain as CF is a progressive disease that can change course at any moment. We feel incredibly fortunate for the recent medical advancements and new medications that are having amazing impact on those with CF.  Drugs like Alyftrek, Trikafta and other “miracle drugs” that are in the current R&D pipeline give us hope, but it is not a cure and Aria and Jack still deal with the challenges of living with CF every day. However, it is because of the persistency and dedication of the Cystic Fibrosis Foundation and because of people like you, that I am more hopeful than ever for the future of Aria and Jack and for those with Cystic Fibrosis. Please stand alongside of us, stand with Aria and Jack to let them know you support them and that you support our family. Join us for the Great Strides Walk on April 26, or simply make a donation so that someday CF will stand for CURE FOUND.

Comments

$1,200
raised of $10,000 goal
 

Achievements

11 Participants

recruited
Join Our Team

Recent Donations

Vera & Don DiCenso$100
Katie Teufel$50
Dominic Laruffa$100
Dominic Laruffa$100
Joanne Sharrock$100

Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.