J & A's Angels & Suley's Strength 2025
J & A's Angels & Suley's Strength
J & A's Angels & Suley's Strength
Hi Everyone!!
Hoping all of you are doing FANTASTIC and your year has started off to a good one!! So here we are again reaching out to all of you amazing supporters to help us FIND A CURE FOR CF. As many of you know Johnny and I have 4 beautiful, amazing and talented children with 2 of which were born with Cystic Fibrosis... Although CF was not something new to us we sadly lost our precious Suley (Johnnys sister) in 2007 at the young age of 22 to this horrible disease. So our DETERMINATION and FIGHT for a CURE burns deep.
If you are new to us this year ~ WELCOME!!! Here is a little bit about CF and our CF FIGHTERS!!
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Our beautiful Ashley Paige was diagnosed at 6 weeks. This year our girl turned the "BIG 1 8" and will be graduating HS in June.. Where has the time gone?? She has an amazing soul and loves fiercly. She continues to Drive foward and I can only expect AMAZING THINGS from her. She has had an Awesome year ~ keeping herself healthy and no admittance to the hospitals!
Now on to our little man Jacob Chase. Well I guess he isnt that little anymore... He is now 11 and in MS.... Although he was born 6 1/2 weeks early and has dealt with many obstacles ~ he has never let anything stand in his way. Always a positive outlook and that beautiful smile of his would melt your heart. He also has had an AWESOME year with no admittance to the hospital ~ still working on the weight gain but we will get there!!!
I am truly blessed to say both of my fighters were able to start Trikafta ~ it is a med that stops the progression of CF ~ it does not cure it but it gives all of us HOPE!
There is currently no cure for cystic fibrosis and too many people with CF die young.
Our family will be walking to raise funds and awareness in the "GREAT STRIDES/CURE CF WALK" @ Cedar Crest College in Lehigh Valley on Saturday ~ 4/26 @ 9am. We would truly love for each and every one of you to join us. We completely understand so many have crazy schedules so if you would just like to DONATE that would be awesome too!!!
If you are able to join us ~ we do have shirts made for our team. They cost $30 (half of the proceeds will go towards the purchase of the shirt and the other half will go towards a donation). If you are interested please let me know by 4/1 @ laurapaulinaarias@gmail.com.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Hoping all of you are doing FANTASTIC and your year has started off to a good one!! So here we are again reaching out to all of you amazing supporters to help us FIND A CURE FOR CF. As many of you know Johnny and I have 4 beautiful, amazing and talented children with 2 of which were born with Cystic Fibrosis... Although CF was not something new to us we sadly lost our precious Suley (Johnnys sister) in 2007 at the young age of 22 to this horrible disease. So our DETERMINATION and FIGHT for a CURE burns deep.
If you are new to us this year ~ WELCOME!!! Here is a little bit about CF and our CF FIGHTERS!!
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Our beautiful Ashley Paige was diagnosed at 6 weeks. This year our girl turned the "BIG 1 8" and will be graduating HS in June.. Where has the time gone?? She has an amazing soul and loves fiercly. She continues to Drive foward and I can only expect AMAZING THINGS from her. She has had an Awesome year ~ keeping herself healthy and no admittance to the hospitals!
Now on to our little man Jacob Chase. Well I guess he isnt that little anymore... He is now 11 and in MS.... Although he was born 6 1/2 weeks early and has dealt with many obstacles ~ he has never let anything stand in his way. Always a positive outlook and that beautiful smile of his would melt your heart. He also has had an AWESOME year with no admittance to the hospital ~ still working on the weight gain but we will get there!!!
I am truly blessed to say both of my fighters were able to start Trikafta ~ it is a med that stops the progression of CF ~ it does not cure it but it gives all of us HOPE!
There is currently no cure for cystic fibrosis and too many people with CF die young.
Our family will be walking to raise funds and awareness in the "GREAT STRIDES/CURE CF WALK" @ Cedar Crest College in Lehigh Valley on Saturday ~ 4/26 @ 9am. We would truly love for each and every one of you to join us. We completely understand so many have crazy schedules so if you would just like to DONATE that would be awesome too!!!
If you are able to join us ~ we do have shirts made for our team. They cost $30 (half of the proceeds will go towards the purchase of the shirt and the other half will go towards a donation). If you are interested please let me know by 4/1 @ laurapaulinaarias@gmail.com.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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