Edit in profile section

My Great Strides Story

Stephanie Veto
Donate

Stephanie Veto

Hello! My daughter, Evan Noelle, was born with cystic fibrosis in 2022. Soon after birth (20 minutes to be exact, because that's all I was allowed to hold her for!) she was whisked off to NICU where she spent 52 days. She had multiple surgeries, medical crises, and bunch of other curveballs thrown at her, but she got through it and is living her best toddler life. 

My family and I educated ourselves quickly on this life shortening disease. Along with her care team we work hard to give her the highest quality and healthiest long life she deserves. 

We ask you to participate in this event to help find a cure for people with cf. 

Join our team! The walk is at Cedar Crest College at 10 a.m. on April 26!

*****

There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.

Comments

$564
raised of $100 goal
 

Achievements

Leader

Team Evan Noelle

$1,435
$2,000

Recent Donations

Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.