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My Great Strides Story

Brian VanName

Fundraising for Lehigh Valley Great Strides 2026

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Brian VanName

Hello My Name is Brian and here's a bit about CF

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Here's why I fundraise for CF ! 

I fundraise in memory of my brother, Dale—known to many as “DJ Dude”—who was diagnosed with Cystic Fibrosis (CF) at just six years old. From an early age, his life was filled with daily treatments, long hospital stays, and serious complications, including collapsed lungs. Yet through it all, Dale remained a source of light—always smiling, deeply compassionate, and committed to helping others, even as he faced his own challenges.

In 2013, Dale underwent a double lung transplant, offering a renewed sense of hope. For a time, he began to regain strength, gain weight, and experience moments he had long looked forward to. Unfortunately, complications followed, and he became critically ill. He spent his final months in the hospital, enduring a breathing tube, multiple medically induced comas, and unimaginable hardship before passing away on July 31, 2014.

In the wake of his passing, I knew I needed to turn grief into purpose. In September 2014, we formed “DJ’s Dudes” and began fundraising with the Cystic Fibrosis Foundation through our first Great Strides walk in Rockland County, New York. What started as a way to honor Dale’s life has grown into a lasting commitment.

After relocating to Pennsylvania in 2018, I continued participating in local CF events. In 2023, alongside my sister, we expanded our efforts by joining a Great Strides walk in Missouri—officially making DJ’s Dudes a national team.

Now, in 2026, we mark 12 years of honoring Dale’s legacy. Our mission has grown beyond fundraising alone. We advocate, raise awareness at community events, and share Dale’s story to educate others about the realities of Cystic Fibrosis and the urgent need for continued research and support.

In 2025, I was honored to become a Congressional Captain for Pennsylvania’s 7th District with the Cystic Fibrosis Foundation. In March 2026, I participated in my first March on the Hill, meeting with members of Congress to advocate for critical legislation, including the Help Copays Act in the 119th Congress (S.864 / H.R.6423), which aims to improve access to lifesaving treatments for those living with chronic illnesses.

I fundraise not only in memory of Dale, but for everyone still battling Cystic Fibrosis. His strength, resilience, and kindness continue to inspire me every day. This work is more than a tribute—it is a commitment to advancing care, supporting families, and moving closer to a future where no one has to endure what he did.


Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward - a cure for everyone with CF.

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$145
raised of $400 goal
 

Achievements

Leader

Team DJ’s Dudes

$145
$1,000

Recent Donations

Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.