February 8th, 2018 changed my life.

Weston was born — and within 48 hours, something wasn’t right.

Instead of going home and learning how to be parents, we were transferred from UPMC Williamsport to Hershey Medical Center with our two-day-old baby.

At four days old, he had surgery to remove a bowel blockage. He came out with an ileostomy bag attached to his tiny body.

Two months later, another surgery.

And in the middle of all of it, we heard the words:
Cystic Fibrosis.

CF isn’t just a diagnosis.
It’s throat cultures that make your stomach drop.
It’s nebulizers — sometimes two at a time.
It’s airway clearance therapy twice a day, every day.
It’s clinic visits every three months.
It’s learning medical language no parent ever expects to learn.

But it’s also strength.
It’s resilience.
It’s a five-year-old starting Trikafta — a medication that didn’t even exist for kids like him just a few years ago.

We share because awareness matters.
We fundraise because research changes lives.
We fight because Weston deserves the longest, healthiest future possible.

If his story moves you, please consider donating to our fundraiser or simply sharing this post. Every dollar funds research. Every share spreads awareness. And both mean more to our family than you know. 💜