Walk with Team Salty Smith's to Cure Cystic Fibrosis
Team Salty Smiths
Fundraising for Greater Williamsport Great Strides 2026
Team Salty Smiths
We invite you to take part in Great Strides by joining our team. We promise, you belong here! This event promises to be a fun-filled day where you can help advance the care and research needed to cure cystic fibrosis.
By being a part of Team Salty Smith's you are a part of a team that has 2 CF warriors on it. Henry and Bryson. With mutations F508Del and G542X they both have come so far in their CF journeys.
Henry was born in 2019. He was diagnosed through Newborn Screening and we went to his first CF doctors appointment at 12 days old. Over the course of the first 6 months of his life he has 5 hospital stays ranging from Pyloric Stenosis to Failure to Thrive to CF Exacerbations. Since then he has not had a hospital stay in almost 6 years!! Henry has been on Trikafta for 2.5 years now.
Bryson was born in 2021. He has had a vastly different CF experience then Henry did. Where Henry was in the hospital a lot Bryson was not. Bryson was diagnosed at 5 days old through Newborn screening. The only hospital stays Bryson has had was for surgery for tubes in his ears twice, adenoid and tonsil removal. He has been on Trikafta for 2 years and 3 months.
Both boys do daily vest treatments with nebulized medications. Treatments increase to twice or more a day when they are sick.
We as a family work hard together to make sure the boys have everything they need to have the best chances at life including school and sports. While they live with CF they do not live for CF.
By being a part of Team Salty Smith's you are a part of a team that has 2 CF warriors on it. Henry and Bryson. With mutations F508Del and G542X they both have come so far in their CF journeys.
Henry was born in 2019. He was diagnosed through Newborn Screening and we went to his first CF doctors appointment at 12 days old. Over the course of the first 6 months of his life he has 5 hospital stays ranging from Pyloric Stenosis to Failure to Thrive to CF Exacerbations. Since then he has not had a hospital stay in almost 6 years!! Henry has been on Trikafta for 2.5 years now.
Bryson was born in 2021. He has had a vastly different CF experience then Henry did. Where Henry was in the hospital a lot Bryson was not. Bryson was diagnosed at 5 days old through Newborn screening. The only hospital stays Bryson has had was for surgery for tubes in his ears twice, adenoid and tonsil removal. He has been on Trikafta for 2 years and 3 months.
Both boys do daily vest treatments with nebulized medications. Treatments increase to twice or more a day when they are sick.
We as a family work hard together to make sure the boys have everything they need to have the best chances at life including school and sports. While they live with CF they do not live for CF.
Comments