My Great Strides Story
Ashley Hejny
Fundraising for Little Rock Great Strides
Ashley Hejny
When I met Hazel, I knew that she was special. What I didn't know was just how much strength, courage, and light could fit inside on tiny little human. Hazel has cystic fibrosis (CF) - a genetic disease that affects her lungs and her pancreas - but she is happy and healthy, and lives with more joy and resillence than most people I know.
Getting to be Hazel's mommy has been one of the greatest gifts of my life. It has also been a powerful lesson in love and advocacy. Everyday we navigate treatments and medications (much less now thanks to the money that has been raised for life saving research). Everyday we fight for the health of her and others that have been diagnosed with CF. And every day - Hazel reminds us why the fight matters, because she deserves to live a full and vibrant life, just like any other child.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Getting to be Hazel's mommy has been one of the greatest gifts of my life. It has also been a powerful lesson in love and advocacy. Everyday we navigate treatments and medications (much less now thanks to the money that has been raised for life saving research). Everyday we fight for the health of her and others that have been diagnosed with CF. And every day - Hazel reminds us why the fight matters, because she deserves to live a full and vibrant life, just like any other child.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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