Team Emmett
Hi!
Welcome to Team Emmett!
Welcome to Team Emmett!
We are a loud, crazy, chaotic bunch! We are so glad you are here supporting our family, especially Emmett.
While the CF Foundation has made incredible progress we still need a cure. This will require time, funding, and persistence. Emmett's physical health has improved since being on Trikafta, a CF Modulator treatment but there is more that can be done to extend his life / find a cure. We need better treatment options with less emotional / mental side effects so that his whole being can be healthy. We don't want to have to choose between his mental health and physical health. He is a normal little boy with big dreams but received cruddy genes from his parents. We hope one day, his daily treatments will be a thing of the past & he will live to be an old man.
While the CF Foundation has made incredible progress we still need a cure. This will require time, funding, and persistence. Emmett's physical health has improved since being on Trikafta, a CF Modulator treatment but there is more that can be done to extend his life / find a cure. We need better treatment options with less emotional / mental side effects so that his whole being can be healthy. We don't want to have to choose between his mental health and physical health. He is a normal little boy with big dreams but received cruddy genes from his parents. We hope one day, his daily treatments will be a thing of the past & he will live to be an old man.
Thank you so much for being on this journey with us. It means more than you know. Hang on - it is a roller coaster.
Love, The Sachlebens :)
Comments